Seed Grant Profile
SickleREMOTE: Monitoring Sickle Cell Painful Crisis by a Novel, Two-Way Text Messaging SystemSickleREMOTE will be used at Children's Healthcare of Atlanta and other participating institutions in the Aflac Cancer Center & Blood Disorders Service to monitor pain episode frequency and intensity among sickle cell disease patients. The monitoring will be configured as automated short messaging service text messages that arrive rapidly to a mobile phone anywhere on a cellular network. The messages may be reminders to encourage treatment adherence or questionnaires to collect self-reported clinical data relevant to treatment adjustments. Patients respond to the messages using pre-determined templates so the data can be stored directly in a study database without human intervention. At the end of each patient's participation we will conduct technology satisfaction assessments. We will also determine the usefulness of the system to the caregivers using qualitative and quantitative assessments.
Investigators: May Dongmei Wang (Georgia Institute of Technology), Robert Clark Brown (Emory University School of Medicine - Children's Healthcare of Atlanta), Carlton Dampier (Emory University School of Medicine) and Tamara New (Emory University School of Medicine - Children's Healthcare of Atlanta)